Here is an update on my
Surgery yesterday, Wednesday. We had to
be at the hospital by 7:45 am. We left
shortly after 6 just so we didn’t have to get into the rush hour traffic. I
think the thing I dreaded most was getting an IV started. I only had one arm they could use, so I was
praying greatly as the nurse began! She
got right in, into the middle of my arm!
I learned later that she had only graduated from nursing school this
past May. She used a little numbing
medicine, so it was not all that painful.
I told her I was praying for her, and she said, “Well, it was answered!” The other thing I dreaded was gagging on that
plastic airway while waking. I remember
that last time. Thankfully, I was not
aware of that this time. BUT, the worst
part was the pain after the surgery while in recovery. With the other two surgeries, I don’t
remember being in much pain in the recovery room. This time it was quite excruciating! I don’t know how many times she gave me IV Fentanyl. I remember the last surgery getting a large
enough dose of it that I was having trouble breathing. That’s what I kept being concerned about
every time she said, “I’m giving you some more Fentanyl.” I didn’t have trouble breathing, but it didn’t
really help the pain. She gave me 2
Percocet by mouth, but that was going to take a while. She called the resident
doctor over, and he OK’d some IV Toradol.
That helped just a tiny bit, but not nearly enough. The doctor finally OK’d IV Dilaudid. FINALLY – I got some sweet relief!!! But then I just wanted to sleep, and they
just wanted me to get dressed and go home.
I guess I was about to run out of “outpatient time.” At one point, before they gave me the
Dilaudid, they talked about keeping me over night. I finally decided I was going to have to get
dressed. They practically dragged me out
of the bed, wheeled me to the bathroom, and help me dress while Guy went after
the car. But at least my pain had eased to
about a “1”. We left for home about 2:00
pm.
I guess the top of your head
is more tender than all the other areas.
With the other two surgeries, my head never hardly hurt at all. Of course, most all the areas of the other incisions
are numb. I assure you, this one is NOT!! There is an inch to 1½" incision with 8
stitches (and more hair shaved! But that's all right since I'll probably lose it all anyway). He did not have to do a skin
graft (so thankful for that!) – just pulled it together with the incision going
from front to back. It is quite tight!
If I make any movement of my face – raise
my eyebrows, frown, laugh – it hurts. It’s
funny, I can smile, and it doesn’t hurt.
It is amazing how all the muscles of your whole head are connected. I decided I was going to take that Percocet
every 4 hours to stay on top of the pain.
I took one at 3:15, 7:45, and one at 11:45 before going to bed. I took Tylenol every 6 hours. I was amazed that I slept through the night
hardly moving and not getting up to take any pain med. I think that is actually the best night’s
sleep I’ve had for some time. I got
hardly ANY sleep the night before the surgery.
My wheels just kept turning and turning from the visit with Dr. Powers
that day – chemo, PET scan, chemo, chemo.
ARGH! I tried so hard to focus on
the positive part, but you know how it goes sometimes at night – everything looms
larger than life. I had told Guy I was
looking forward to the anesthesia just to get some sleep! I think he only slept
about an hour, too – he has a bad cold now. ARGH!
Anyway, I got up about 9 this
morning, even though I woke up about 8.
I decided to only take Tylenol today, but this afternoon, I had to break
over and take a oxycodone, and that helped immensely. I’m a little dizzy if I move my head too
fast, but I suppose that is a little hang over from the anesthesia.
The OT lady came today to
check on my left hand usage. She was
amazed at how much use had returned. It
is weak yet, but I can move it well. The
only issue is my thumb. It is better
than it was when I was having the stabbing pains last week. I’m sure it probably has something to do with
some nerve damage from my wrist. I’ve
had a good bit of muscle-wasting at the base of my thumb. I just can’t bend my wrist as normal yet, but
I’m not really supposed to do a lot of that yet anyway. She talked about massaging the scar once it is
healed to help loosen the skin from the underlying tissues. That will take a good bit of massaging! I can
tell you that! It is very tight – just skin
nailed to the muscle. That continues to
heal well. While I was in the pre-op
room, my plastic surgeon came by (since I was supposed to see him in his office
that day anyway). He took a look at my
arm and my leg and said that both were doing great. My arm has dissolving stitches in it. That’s great because I had told Dr. Mammen it
would be great if Dr. Przylecki could come by while I was out during the
surgery and take out my arm stitches!
Sure glad I don’t have to go through that now! Dr. Przylecki said to see him again in 2
weeks. I’ll see him on that Wednesday,
then Dr. Mammen and Dr. Powers on the day following. Hopefully, after that time we can head back
to Little River!
I called Dr. Powers nurse
today to say that my preferred site for the chemo was Hutchinson, then Wichita,
then McPherson – whichever one of those he would be most comfortable with. I look for that to start after the 1st
of the year. I suppose it could be
before Christmas, but I hope not. In the
meantime, I’ll just keep checking my head – hoping for no new bumps!
Someone did the sweetest
thing – today I got a box in the mail.
It was a little Christmas tree!
Ornaments also came, but I need to find some wires to hang the
ornaments. I’ll get those at the store
the next time we go. The tree is pre-lit,
and the colors change. It is so pretty
and colorful. Now I have a little Christmas spirit in my life – sitting by my
chair, right by the fireplace. Many thanks to
whoever sent it. (It’s one of two
people, I’m pretty sure!)
Tomorrow the home health
nurse comes, and as far as I know, she is the only commitment I have next
week. That will be nice, especially
since there is a chance of snow flurries Wednesday. Now if I can just get my hair washed over the
next day or two and get this nasty saline-stiffness-that-make-it-feel-like-a-broom
out of it, I’ll be a happy camper.
Thanks once more for all the
prayers and sweet thoughts. “Thanks”
seems like such a small word to use, but I really do mean it!!
As always, I’m in His hands…..
OK – STOP scrolling of you
don’t want to see the picture.
It really looks worse than it is - it's all goopy with Bacitracin. My face is to the left.
If you come to Hutch for your chemo, I hope your experience is as good as mine was (if chemo can have a good side). The nurses were great,there are good anti-nausea drugs in the IV's, and I always looked forward to a nap because of the Benadryl in the IV. The summer of 2015 I had 4 rounds of chemo, one day every 3 weeks, prior to bilateral mastectomy because tumor on left side was 9 cm x 5 cm x 6 cm! Surgeon would not do surgery until chemo shrunk that tumor, which it did (down to microscopic size!) I was on the chemo Taxotere and monoclonal antibodies Perjeta & Herceptin. Surgery was end of Aug 2015 and then I continued the Herceptin IV for 8 more months every 3 weeks. So, the chemo room became a 2nd home for a year. I'll come visit you there if our school has a day off at a time you get chemo,or if you get it late in the day. I'm a para at Nickerson Elementary.
ReplyDeleteI understand how you felt when you first had to see an oncologist - it is sooo surreal, and what am I doing in this place anyway! Also, waiting to hear news after a CT, PET or bone scan can be so nerve wracking. The unknown is sometimes worse than the known. Praying your surgeries and chemo will be very effective.
Melanie Hawthorne